Confidentiality

We will make every effort to protect the rights and personal information of you and your family.

1. The identities of all our participants are coded by a number, not a name, in order to keep your information confidential. Any paperwork containing your or your child's full name is kept separately in a locked file, and will be destroyed after the study is complete.

2. All data will be kept in a secured, limited access location. The only people who will have access to data and videotapes will be research staff and other authorized individuals.

3. Your identity and that of your child will not be revealed in any publication or presentation of the results of this research. Furthermore, once the study is completed, the data and videotapes will be stored in a secure location for archival purposes.

4. To help us protect your privacy, we have obtained a Certificate of Confidentiality from the National Institutes of Health. This provides an additional layer of protection that helps to protect researchers from being forced to disclose your information to others.

Participation in this study is voluntary. Participants also have the right to change their mind and leave the study at any time.